GDPR / Privacy Notice

Privacy Notice


Who are we and how you can contact us?

Please take a few minutes to read over this notice. Your privacy is important to us, MSD Action Foundation ( is a trading name and is one in the same body). This Privacy Notice sets out what may happen to any personal information you give us. Our registered address is MSD Action Foundation, Grattan Lodge, Balgriffin, Dublin 13. Email addresses: or


Authority and Permission to use Personal Information.

Relevant Conditions.

We are issuing this Privacy Notice because of our duties under the General Data Protection Regulation which came into force on 25th May 2018. The Privacy Notice applies from that date. We are setting out in this Privacy Notice the grounds on which we will deal with personal information belonging to you and to other people and some common examples. Stricter rules apply to some types of personal information which may be described as sensitive personal information. We are also letting you know what conditions apply (often to protect your privacy) to how we can deal with personal information. If unusual circumstances arise not covered by this Privacy Notice, we will address these when we are communicating with you.

A) Consent: We will deal with your personal information with your consent. You should only give consent once you have read this document and click the consent button on the email. You can alternatively choose to unsubscribe at any time by following instructions at the bottom of an email that you may receive from us. If you choose to do this we will delete any personal information that we hold that relates to you that you have previously shared with us.

B) Vital interests of the person referred to: We are allowed to deal with a person’s personal information in order to protect the “vital interests” of the person or of some other person. If the information is sensitive personal information, we may only deal with it on this basis if the person is physically or legally (for example in the case of a child under 18) incapable of giving consent.

C) Maintaining contact: It may not always be clear when an existing query requires us to make contact, and we may in due course be able to help or reply to you with some matter other than the one you initially got in touch about. We may also send you updates by email and/or post although in the vast majority of cases we will not have your postal address. Therefore, we will retain your contact details such as landline phone number, mobile phone number, fax number, email address, and home address if you choose to provide such information unless:

  • You tell us you don’t want us to retain that information
  • We stop being a registered charity and there is no prospect of re-registering within a reasonable period after that.

D) Other grounds: We will deal with (including disclosing to someone else) your personal information if the law requires us to do so. For example, in the extremely unlikely event that we must disclose particulars of donors, if requested by any such law in Ireland, where the law has been deemed to have been broken and we have been summoned to provide such information. We must make annual returns which may list names of anyone who has conferred certain types of substantial benefit to us. If we feel we need to use your name in this regard we will contact you for your explicit permission. We will need to deal with your personal information if you exercise rights under data protection law. We will also deal with personal information if the dealing is needed so that we can obtain legal advice or if we need to take part in court or similar proceedings.


Who will get your personal information?

This depends on why we are dealing with it. No-one will get it voluntarily who does not need to receive it for the purpose for which it is being dealt with. For example, if you ask us to make a representation on your behalf, your personal information may be used in relation to such explicit matters set out by you. If we deal with personal information to fulfil a legal duty, the relevant law will specify who receives it. If we need to deal with it to establish, exercise, or defend our legal position, it will be passed to and dealt with by our legal advisers, and, on occasion, by other parties to a relevant dispute or their advisers, or to expert or other witnesses, or to the court, tribunal, arbitrator, mediator, or similar entity. Occasionally, legal provisions or a court order may require us to deal with personal information for a purpose apart from why we obtained it, or was otherwise dealing with it.


Transfers to third countries:

We do not believe that any personal information we are dealing with and to which this Privacy Notice applies will ever be transferred to a country outside of Ireland.



I will keep personal information only as long as is necessary for the purposes set out in this Privacy Notice. In any event, we will not, without your express consent, specific to the particular personal information and the relevant purpose, keep it or otherwise deal with it (than to delete it) if we stop being a registered charity and there is no prospect of re-registering within a reasonable period after that. There may be rare exceptions to this assurance, such as where the personal information is relevant to a legal dispute ongoing at the time when we may stop being a registered charity.


Further dealing with personal information:

It would be very exceptional for us to deal with personal information for a purpose other than the purpose for which we received it. The need to do so might arise because of a legal obligation. Or it might arise in the public interest, for example, if we received personal information where there appeared to be legitimate grounds for forwarding it to a regulatory or investigative authority. Depending on the circumstances, we may need to tell you of the contemplated further dealing with the personal information and who is going to receive it.


Your rights about your personal information:

You may ask us for a copy of your personal information. You may ask us to supplement or correct your personal information if it is incomplete or incorrect (including out of date). You may be able to ask us to delete personal information, especially if you have withdrawn consent to us dealing with it or we no longer need it, or not to deal with it for the time being, for example, if you think it is incorrect. If we are dealing with your personal information on the basis of your consent, you can normally require us to forward it on to some other person named by you. You may be entitled to object to my dealing with your personal information in the public interest or in my exercise of official authority, but this entitlement is subject to many legal qualifications depending on the personal information and why we are dealing with it. You may object at any stage to our holding on to your contact details. You are entitled not to be subject to automated decision making, including profiling.



If you are not content with how we are dealing with your personal information, you may bring your dissatisfaction to the attention of the Data Protection Commission: see